We went and saw our Perinatologist yesterday where we also met up with a Genetic Disorder Counselor. It was a long appointment, with a TON of information. I'm not going to go into all the details because a lot of it is decisions Benton and I are making as their parents and what we think will be best for them both.
What we know is that both their heart beats looked/sounded good. Baby A is still healthy and doing great. They are still unsure if Baby B's bladder is on the outside of her body. They want to do a Fetal MRI, so they can can get a better look at her CDH (Congenital Diaphragmatic Hernia) as well as her bladder. Her Spina Bifida is on the lower part of her tail bone, which they can do surgery on to help fix. The most concerning problem is the CDH. The life expectancy for babies born with CDH only make it to about a year old. If both babies make it to term I will deliver at the University of Utah, so they can take her over to Primary Childrens. They will induce me by 36 weeks. Baby B has to weigh 4.5 pounds in order for them to be able to operate, so I need to be at least 32 weeks along.
We are hoping and praying everyday that they both make it till delivery. It would be a blessing to give birth to both of them. Any time that I have with them will be an incredible gift.
4 comments:
I'm glad you were able to get more info, I'm always thinking of you <3
I LOVE getting info from you. When I asked Benton what the latest was he said "its the same, we dont know much more" UM HELLO this is alot of info here:)I vow to only call you from here on out. I am praying that you will make it full term and you will get to hold both those little miracles:)We love you!
dear Melissa...
I was behind on your posts and what I just read brings tears to my eyes. dear friend, I don't even have words for you. I can't imagine how you must feel. I too believe in miracles, she may just be your little miracle baby and either way she will be yours again someday. Keeping you and Benton and sweet Cambree and the twins in my every prayer. I am amazed by your words and your sweet faith, you are an amazing person and even better mother, no doubt in my mind these special little spirits were sent to you for a reason. Lots of love...
Oh my I am so so so very saddened to hear this news. Oh my friend my heart aches for you, I hurt for the pain you must be feeling...both of you.
I am so very sorry you had such a rotten prognosis given to you. But that said I truly do believe in miracles. Luke had a 5% chance of survival when my water broke with him at 18 weeks, yet here he is. And perhaps the miracle is in the lives she will touch no matter how long she is here. But for sure those two girls are little miracles and they couldn't be coming to better parents.
You are in my prayers, I am sure each day is just an agony to get through....but that is all you can do right now just make it through each day.
All my love you two.
Post a Comment